Wednesday, December 16, 2009

Living with RA: 2nd Diagnosis

*** This post is part of my Living with Rheumatoid Arthritis series.

The hill before me looked insurmountable.  The gradual slope and half-mile walk from the subway station to the hotel should have been easy for my 25 year old body.  But exhaustion, fatigue, and pain threatened to overwhelm me.

Joel and I were returning to our hotel after spending the day exploring the Jurong Bird Park in Singapore.  We had enjoyed seeing vibrantly colored Toucans and other gorgeous birds in a lush, tropical zoo-like environment.

And we had walked.  And walked.  And walked.  And walked.

As we climbed the gentle hill to our hotel at the end of the day, my internal dialogue went like this:
"Come on, you can do it."  "But I'm so tired!" "Just a little further."  "If I could just sit down."  "You can sit in the hotel.  If you sit now you'll just have to get up and walk some more."  "I can't do this."  "Just take one more step."  "One more step." "You can do one more step."  "One more step." "One more step."  "One more step."

And so I "one more stepped" my way up the hill and to our hotel room.  I have never been so completely exhausted in all my life.  At the time, I blamed jet lag and the previous week spent snorkeling, hiking and sightseeing in Malaysia.

But a year later we would return to Malaysia for another week long vacation and my energy level would be vastly different.

What changed between the two trips?  My second arthritis diagnosis and a new medication.

Around the time of our first vacation to Malaysia and Singapore (I can't remember if it was before or after our trip), I visited a rheumatologist.

Upon entering the exam room, the doctor introduced herself and quickly examined my hands and wrists.  Then she explained that she had seen me walking down the hallway, saw the nodules on my wrists and my inflamed joints and knew then that I had Rheumatoid arthritis.

A thorough exam and blood work confirmed her diagnosis of Rheumatoid arthritis.  She went on to explain that it isn't curable but the symptoms sometimes lessen on their own (called remission) and/or can be helped with medication.  She said the cause for the disease is unknown but that some people (usually fair skinned Caucasian women) seem to have an increased susceptibility to the disease, though it is NOT genetic.

She also explained that a new medication had just been approved for treatment in newly diagnosed patients with moderate to severe RA.  And I fit the category!   So she started me on this new medication, Enbrel.

That was in June 2000.  Nine years later I'm still taking Enbrel.  I won't claim all the pain and fatigue are gone, because they aren't.  But they are manageable and small hills no longer look insurmountable to me.

Instead, they look like challenges.  Challenges that I know I can conquer one step at a time.

Disclaimer:  I am not a doctor nor do I pretend to be one on TV.  This post is intended to tell my experiences NOT to serve as medical advice.  If your symptoms sound similar, please consult a physician.

Disclaimer: I have not been asked by a pharmaceutical company or any related organizations to write these posts. I have not been compensated for these posts in anyway (including money, medication, or medical treatments). 

Wednesday, December 9, 2009

Living with RA: Getting Worse AFTER My 1st Diagnosis

*** This post is part of my Living with Rheumatoid Arthritis series.

The alarm clock went off, signaling the beginning of another day. I slowly climbed out of bed and shuffled down the hall of our second floor apartment to the bathroom. There, I turned the shower on as hot as I could tolerate and let the water wash over my inflamed joints. The heat usually helped take away some of the stiffness.

4 different medications and two and a half years had passed since my first (unspecified) diagnosis of arthritis. I couldn't deny to myself that my disease was worse. A growing list of things I could no longer do made that clear:
  • Unscrew a grape juice bottle for the first time.
  • Unscrew a pickle jar lid that had previously been opened.
  • Peel a potato with a knife.
  • Quickly descend a flight of stairs.
  • Stay awake passed 8 PM.
  • Open my mouth wide enough to bite into a hamburger.
  • Get up off the floor by myself.
  • Squat down to talk to a child.
  • Kneel on the floor.
By this time Joel and I had been married for 3 years and I wanted to start having children. But I was afraid. Questions filled my mind:
  • How could I care for a baby all day alone when I couldn't screw on the lid of a bottle?
  • How I would I tie a toddler's shoe or zip up a coat when I couldn't kneel or squat?
  • How would I keep up with an energetic preschooler when I was sleeping 8-10 hours a night and napping 2-3 hours in the afternoon and still felt exhausted?
In the spring of 2000, relief for my pain and answers for my questions came about in the oddest way.

Because of severe TMJ, my dentist sent me to an oral surgeon. The oral surgeon just happened to be knowledgeable about the different kinds of arthritis. After examining my jaw and seeing the joints in my hands, he suspected I had Rheumatoid arthritis, NOT osteoarthritis, the most common form and what athletes and seniors get.

He scolded me about not seeing a rheumatologist (a specialist in the field of arthritis and related diseases). He also explained that I probably had RA, which affected my immune system and needed very different treatment than osteoarthritis. He even went so far as to call my primary care doctor and tell him I needed to see a rheumatologist!

On the next visit to my P.C., he handed me a referral to a rheumatologist in my area.  And that was that.

Once again I had hope that the pain and fatigue would go away and that my "Can't Do" list would become a memory of the past.

Disclaimer:  I am not a doctor nor do I pretend to be one on TV.  This post is intended to tell my experiences NOT to serve as medical advice.  If your symptoms sound similar, please consult a physician.

Disclaimer: I have not been asked by a pharmaceutical company or any related organizations to write these posts. I have not been compensated for these posts in anyway (including money, medication, or medical treatments). 

Sunday, December 6, 2009

25% Off at Hearts at Home!!!

 Everyone loves a good sale, Right? We'll let me tell you about a great one:

It’s a Hearts at Home

Black Friday after Black Friday Sale Dec. 7-11


Did you sleep in on Black Friday? Did you drag yourself out of bed, but still miss out on some awesome deals because you were standing in line too long at one store? Do you still have shopping to do, but dread the crowds, traffic, and cost? Let Hearts at Home help!


Their Black Friday sale has been extended to the week of December 7-11. Shop in the convenience of your own home and receive an unprecedented 25% off all of Hearts books and merchandise. They have great gifts for everyone in your family.

Find gifts for friends, teachers, bible study leaders, bus drivers, and everyone else on your list. You may even find something for yourself. This is a great time to stock up on all those Hearts at Home books you’ve been wanting to read.

Let your family know how much you would love a Hearts at Home gift certificate so you can use it for your Hearts at Home conference registration and/or Mom’s Night Out tickets.


Go to Heartshoppe.com, choose your gifts, and enter code “HEARTGIFT” upon checkout. You will receive 25% off your total purchase (before tax and shipping).

I also want to fill you in on a couple of other great opportunities!
Be sure to check out Jill Savage's blog this month (she is the founder and CEO of Hearts at Home). She is doing one giveaway A DAY through Christmas.

And, if you stop by the Hearts at Home blog December 8 - 11, you will have an opportunity to win a Heart's at Home prayer journal. The prayer journal is a brand new resource from Hearts at Home.

Merry Christmas from Hearts at Home!

Disclosure:  This post was provided in its entirety from Hearts at Home.
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